Awakening Our Diversity

Our aim is to raise awareness of treatment paradigms that project XXY’s of all ages on a path toward virilisation often undertaken without regard for what the person wants or needs. Rejections are not uncommon and can lead to psychological stress leaving the individual to question their identity and place in the world. The impact is exacerbated by a lack of support from those who instigated treatment and often the person finds themselves alone spiralling into a psychological abyss. Not helpful is a doctor’s limited exposure to the healthcare needs of XXY with most focussed on Hypogonadism (Klinefelter’s Syndrome) and how it can ‘easily’ be addressed with the administration of exogenous testosterone. Missing from this directive is the absence of longer-term research across all age groups a consequence being our experiences are compared with XY Males even though our biological makeup is intersex. In raising awareness we hope to educate those responsible for our needs to the knowledge we are all individuals and need to be treated as such.

 

Welcome

Perhaps you are a parent of an XXY child and seeking answers to some puzzling questions, or perhaps the child is having a difficult time with Testosterone and you are trying to understand why. From the experiences of XXY’s who contribute here, we hope you will gain a greater insight toward the impact Testosterone can have on an XXY body and in the process come to realise hormones are not the be all and end all, that better outcomes are possible when the child is fully informed of what is expected of them. Additionally, we hope your overall experience with us will be positive and that you will take this with you and share amongst others.

Perhaps you are an XXY Adult who has been using Testosterone for many years, and you like the impact its had on your overall self, you might well describe it as the missing piece of the jigsaw and wish you had been able to access it much earlier than what you did, as, to your mind it may have offset identity and social issues you had to the point of diagnoses and your subsequent access to it.

Perhaps you are an XXY Adult who found Testosterone unsettling that it turned your life inside out and upside down, and that your doctor didn’t understand your rejection of it. Perhaps as a consequence of Testosterone, it exposed you to Gender Dysphoria and support networks you had in place to that point were totally useless in terms of understanding and support. Perhaps you were able to seek out newer networks and things are better now, or perhaps you didn’t and life is not what you would like it to be.

Perhaps you are an XXY Adult who through using Testosterone have come to reject a Male identity but, do not see yourself as Female either, perhaps Gender Queer, Non-Binary, perhaps you are still searching.

Or perhaps you are simply curious about XXY or might know of someone who is and you would like to better support that person. Perhaps you might believe yourself to be XXY.

Whatever the reason that brought you here, we hope the experience will be one of enlightenment and make you realise the broad spectrum of life that being XXY entails, that every person regardless of how they see or live their life is more than worthy of that existence and that all any of us can and should do, is live our lives to the best of our abilities wherever that should lead us.

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I sat down with David Cameron Strachan to reflect on intersex and LGBTQ history, the meaning of “non-binary” gender, and a recent court victory—The San Francisco Superior Court granted David’s petition for non-binary gender markers** last Wednesday. He is now the 5th legally non-binary person in California! David has been an intersex activist for over 20… Read More

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At Beyond XXY we are in the process of winding up other interests so as to concentrate more on the Website and Blog, as part of that process we’ve saved a couple of posts which we believe are worthwhile hanging on to, such as this TEDx talk by Cecelia McDonald where she talks about the… Read More

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In 1952, Rosalind Franklin was at King’s College London investigating the atomic arrangement of DNA, using her skills as an X-ray crystallographer to create images for analysis. One of her team’s pictures, known as Photo 51, provided the essential insights for Crick and Watson to build the first three-dimensional model of the two-stranded macromolecule. It… Read More

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Photo Credit: William Daigneault What is clear is that a condition of relative hyperestrogenism is present in these patients, since the estradiol/testosterone ratio is altered thanks to the lower concentrations of total serum testosterone in presence of normal serum estradiol. Accordingly, the results of this study confirm unequivocally the significant reduction in total serum testosterone… Read More

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Genes contain all instructions needed to build an organism in form of DNA. Humans share around 99.5% of DNA, but it is the remaining 0.5% that contain the small genetic variations that make us unique. Subtle differences in genes can, for example, influence the colour of our hair or eyes. To build gene products, such… Read More

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In some ways, the fact that Wikipedia allows for speedy connections between topics should be obvious. After all, wiki is a Hawaiian word meaning quick. What’s perhaps less obvious is why that quickness provides value. Older doctors might suggest that today’s med students have it easy—so much medical knowledge is available on their phones! But the body… Read More

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IVG uses stem cells — the biological clay that can form every body part — to build sex cells, which in humans are sperm and eggs. If successful, the technique could solve infertility due to age, cancer, or various disorders, which today affects tens of millions of people. It could also stretch the possibilities for genetic kinship and nudge biology… Read More

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Did you know that almost 150 million people worldwide are born intersex — with biology that doesn’t fit the standard definition of male or female? (That’s as many as the population of Russia.) At age 10, Emily Quinn found out she was intersex, and in this wise, funny talk, she shares eye-opening lessons from a… Read More

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